Update on Jonah and his ER visit yesterday!!

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I am going to be very transparent. My heart is beyond broken. No it isn’t because of lack of faith – I trust and believe in God completely, BUT There is no greater pain than watching your kids hurt.

We got home about 10 pm last night and my heart aches for Jonah. He does not show a lot of emotions but he cried so hard in the ER. He said all he wants to do is play soccer like before. He said “I just don’t feel right.” I so want to take his hurt away.

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I would give anything to take his pain away. The best Mother’s Day present I could get is for God to completely heal Jonah’s body. To make him whole again. To let him be a kid and do what he loves. I will bear every ounce of his pain, just heal our son.

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We could tell today at Jonah’s game he wasn’t acting/playing right. He just seemed so out of it. PLUS all week long he has been lethargic, more than he has been since his surgery.

When he got in the car he started crying. We asked him what was wrong and he told us he couldn’t catch his breath and his heartbeat felt weird. I text Dr. Lloyd and asked him if we needed to be concerned or what.

Since Jonah’s case doesn’t have any literature and we are all learning as we go, he suggested going to the ER since we were heading home from up in Lansing. When we arrived to the ER he was in junctional rhythm. He later converted back to normal sinus rhythm. His blood work was all good – PRAISE GOD!!

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The cardiologist came down and let us know that they felt he needed a Holter monitor and for Jonah to exercise tomorrow and get his heart rate up and try to reproduce the feeling. They are talking a stress test and echo also just to make sure his heart is functioning okay. They will be consulting the two cardiologist that specialize in arrhythmias to get their opinions.

I am asking all of you to please pray for Jonah and his healing. Seriously my heart is so burdened!!! Please God just heal our precious Jonah!

GOD IS GOOD. . .ALL THE TIME!!




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Jonah’s Journey – 1st Soccer Game since Open Heart Surgery!

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Jonah’s Journey

As most of you know our 13-year-old son, Jonah, had open heart surgery February 23, 2017. He had a very rare congenital heart defect that we just found out about in December.  He actually is only the 6th person in the world with this condition.  

Thursday he was six weeks postop and was officially released to be able to begin soccer practice again. That means he only got two practices in and they had a game today.

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His cardiologist, Dr. Suarez, gave him permission to play this weekend. I can tell you I had so many mixed feelings about today; worry, excitement, fear, joy – pretty much any emotion you could think of.  Jonah has such a passion for soccer that I knew how excited he was so I tried not to show my concern.

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Ameer and Jonah 

When we got to the field today, we were able to pray over him and just ask for God’s blessing and hedge of protection over him and his entire team. To see Jonah’s eyes light up during warmups was priceless, but I still as anxious.  I just knew how excited he was.  

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Jonah on the left wing 

The coach started him on left wing and when I saw him on the field for the first time since surgery my eyes filled with tears. Tears of Joy for the blessing that Jonah is. Tears of joy for the warrior that he is. Tears of joy because he has overcome so many obstacles since birth and still remains faithful. 

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Jonah waiting the play out 

Jonah has always been one of the fastest, if not the fastest player on the field. Today, not so much. I could tell after 5 minutes into the game Jonah was exhausted. I saw the coach ask him if he was okay and Jonah nodded yes, but about 10 minutes into the first half, I saw he looked over at coach and knew he was too tired and needed to be taken out.  I was worried, is he having chest pain?  Is he okay?  

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Love my #22

I just felt sad and worried. I know he is only six weeks postop open heart surgery, but I have never seen Jonah like this before. I could tell he was disappointed that he was so exhausted. So being the worry wort that I am, I text Dr. Suarez just for reassurance. I was concerned; was it okay that Jonah was that tired already?

Honestly, I was embarrassed to text him, but I just needed to “know”. I needed to hear it from him.  He responded almost immediately that he expected that. He told me that Jonah had not been conditioning, because of just having surgery, and we just need to give it time. Of course, that made me feel better. BUT my heart still hurt for him, because I knew Jonah was disappointed.

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Jonah in the mix of it for the second half 

The second half started and the coach let Jonah know that he was going to play him the last 20 minutes and play him up top. The second half for Jonah was much better. He seemed to get his “mojo” back. He still looked tired, but seemed more relaxed and more like “the Jonah” we know. He even had a couple shots on net and almost scored one, but the goalie had a great save.

After the game it was cute to watch his teammates all talking to him. I even heard them telling Jonah how much they wished he would have scored and if he did, they were going to go “crazy”.

We have been so blessed by this team – the Michigan Wolves-Hawks Soccer Club. These boys have all become such good friends and really look out for each other.  It has been such a great support system not only for Jonah but for our entire family; from the club, to the coach, to his teammates, the parents, etc.  We know God was instrumental in Jonah playing for this club.  

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When we got in the car Jonah said he was so glad to be back on the field, but he knew his was “off today”. We got home and he asked Jamie to go over to the field with him so he could practice.

Jonah has so much dedication to this game. He wants to excel and puts everything he has into the game. I could not be more proud of him. For his determination and resilience.  I know it will take time but I cannot tell you how AWESOME it was to see him back on the field doing what he loves – PLAYING SOCCER!!

Again, thank you all for your love, support, and prayers. You guys mean the world to our family.

GOD IS GOOD. . . ALL THE TIME!!




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Jonah’s Journey – 1st soccer practice since open heart surgery and video!!

 


Jonah’s Journey

Tomorrow Jonah will be six weeks postop open heart surgery and it is amazing watching him recover. Not only health wise, but spiritual wise also. He has grown leaps and bounds through this whole adventure.  

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Immediately following his open heart surgery when we got to see him for the first time in the ICU 

There is nothing that prepares you as a parent to see your child like this.  BUT I look at that picture now and think WOW in six weeks he has come so far.  God has done an amazing work in Jonah and for Jonah.  

Yesterday, he was allowed to go back to practice and we have the video attached above. He is in the bright orange jersey (23) – his official number is 22, but we had him wear that jersey so he stood out so the boys didn’t get too rough with him. I was a nervous wreck him going back.  He is working a protector over his sternum (even though the doctor said he did not need it, but mom thinks he does LOL) 

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The first time back to practice when he could ONLY watch his team, BUT not practice

Jonah was so thrilled to be able to go back to practice and I think his teammates and coach were just as excited as he was. They had a scrimmage and Jonah did very well. After practice he said he was a little tired, but no chest discomfort or anything cardiac – PRAISE GOD.

I have included pictures of Jonah playing soccer at his fullest in the fall and winter.  He plays for the #1 club in Michigan, the Michigan Wolves. God knew last year that this is where we needed to be and we are so thankful for those blessings.  Not only Jonah’s team, but the entire club has embraced our family and given us more support than we could have ever imagined.  We are blessed. 

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Nobody is going to get by him when he sees the ball – LOL

Jonah did so well his coach told Jamie he thinks he is going to use him this weekend in the games for a little bit. We were actually going to wait until April 19th, but since he is doing well and the coach is going to take it slow, we decided that it would be okay.

When Jonah got home last night to see him glowing. He was so full of life again. So happy to know he is back doing what he loves – playing soccer. I cannot tell you how much this fills my and Jamie’s hearts with joy.

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Look at how far off the ground he is – SPIDERMAN 

It has been a tough road for us too. It is not easy watching your children go through a health crisis. We have found that we worry about everything with him now. If he acts overly tired, is it because he didn’t get enough sleep or is it that his heart is not functioning properly.

We know this is a congenital defect and that Jonah will have ups and downs for the rest of his life, but we are so thankful that he is able to play soccer again. We are so thankful that God has placed him with some of the best physicians in the country.  

If he does play this weekend, I know that it will be very emotional for us. It was funny to hear the parents talking and the one dad said, he hopes nobody gets to rough with Jonah because there may end up being some red cards given out to his teammates. Jonah’s team is very close. They have formed a very unique friendship in a short time that they truly do watch out for each other and I know they are very overprotective of Jonah right now. I think the parents and coach are too :-)

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The team celebrating after a goal – that is what a TEAM looks like 

I cannot tell you how much your prayers have meant to our family. To know we have had such a tremendous support system has been amazing. When we have felt so exhausted, I have known I could ask for prayers and 1000′s of you would be covering not only Jonah, but our family too. You are all appreciated more than you will ever know.

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Jonah will be making a video in the next week or so to let you all know what it has meant to him as well. I am excited for you all to see that. Please know our family loves each and everyone of you very much.

GOD IS GOOD. . . . ALL THE TIME!!




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Jonah’s Journey – 5 weeks Postop Open Heart Surgery & Holter Monitor Results!!

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Jonah’s Journey – 5 weeks Postop

As many of you know our son, Jonah, who is 13, underwent open heart surgery on February 23rd. His recovery has been pretty amazing with a few hiccups.  It has been emotionally, physically, and mentally exhausting at times, but we have truly trusted in God.  

Jonah’s heart had went into junctional rhythm, so his cardiologist ordered a 48-hour Holter Monitor a week ago to see exactly what was going on. Last night he text me with the results.

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We are so thrilled that it looks like the junctional rhythm is combined with normal sinus rhythm. That means that his heart is healing. There may still be some problems, but for the most part, Jonah’s heart is healing well. They will reevaluate him at eight weeks postop to make sure he is in normal sinus rhythm.

There has been talk about him possibly needing a pacemaker, but we are completely believing God that he will go back into normal sinus rhythm.

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This weekend his team had two soccer games. We went to both games. It was very hard to watch Jonah sitting on the bench knowing how badly he wants to get out there and play. He was cheering his team on, of course, but I just knew he wanted to be in on the action LOL :-)

He has gotten the clearance that he can start practicing this Thursday. We just have to report to his cardiologist how he does and Jonah knows to take it slow. Well, if you know Jonah, I am not sure that is possible.

He also got the okay to start walking on the treadmill. He has been walking about 2 miles a day for the last few days. He told us today, he just wants to get back out on the field.

He loves the game and he loves his team. In all the years Jonah has played, this team has just meshed really well. It is fun watching the boys excel and grow not only as better soccer players, but as better people. His teammates and coach have been great with Jonah and our family. We have had so much support it has been wonderful.

This is a picture Jamie took of the coach with the players after the game today. What a great group of boys.

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Tentatively, Jonah’s first game will be April 19th. He is so excited and honestly Jamie and I are too. I know it will be a very emotional day for us. To think, just weeks before that, he was lying in a bed after open heart surgery. I look at this picture of him and Jamie the day after his surgery and how he struggled to even stand up.

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Then, I look at him today and all I can do is Thank God. I know I will be worried as he gets “roughed up” during the game, but what a testimony once again this will be for Jonah.

He truly is a warrior. He has never given up. He has remained faithful to God knowing His plans are good for him. I think this time of his illness has truly helped him grow in his faith and as a young man.

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The thing about Jonah is, he has a heart for others. He is truly a very selfless young man. Our hearts are full of joy as we get closer to the day he can walk back on the field and play the game he loves – SOCCER!!

Thank you all for your continued prayers. We still have no idea what obstacles Jonah may face from this surgery, as there is little research on his condition, but the one thing remains . . God is faithful and he has done amazing things through Jonah already.

GOD IS GOOD. . . ALL THE TIME!!




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Update on Jonah’s Journey and ER Visit Last Night – #PrayForJonah!

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Jonah’s Journey 

Thank you all so much for your prayers last night as we had to call 911 for Jonah. As the paramedics arrived and they did the EKG, you could tell they were somewhat dumbfounded by what they saw. Jonah’s case is very rare and his EKG looks like an “old person’s EKG”. Not something you would see in a 13 y/o athletic boy.

He came downstairs a little after 10 p.m. and was as white as a ghost.  He said he was short of breath and having severe chest pains – a 10/10.  We called 911 and text Dr. Suarez.  This is something we don’t want to mess around with.  There is little research on Jonah’s condition, so we don’t want to take any chances.  He is only the 6th in the world with this condition.  

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Jonah is in junctional rhythm ,which means the upper chamber of his heart is not “firing” properly – the electrical part.  This is one thing they were concerned about when they patched his right atrium. Dr. Si, the surgeon, had told us, that it was possible that Jonah would need a dual chamber pacemaker if this happened.  

As I was sitting beside him in the back of the ambulance, I just realized that this is our NEW “normal”. That what life once was, is no more. Jonah will have many hiccups in this road and we just need to be able to go with the flow.  We just need to be able to face whatever comes and that is sobering to realize.

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I can tell you this has taken a toll on me. Some days I feel emotionally drained. I worry about him and pray that God will make him “healthy” again. I can’t wait for the day when I can just sit at one of his soccer games and just watch him be “Jonah” again. Playing soccer, doing what he loves to do.  

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Some days I think it is easier for Jamie because he has little medical knowledge. I know he worries about him, but I don’t think he completely understands the complexity of exactly what is going on. I can tell you, he is glad he doesn’t either hahaha and sometimes I wish I didn’t know as much as I do :-) 

We are blessed by all the wonderful physicians God has placed in our path. We were able to text Dr. Suarez a copy of his EKG and he was able to talk to the paramedics and call ahead and speak to the ER physician and give them Jonah’s history.  That was a huge blessing.  

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We knew Jonah was one a kind early on, but oh my goodness, this is ridiculous LOL :-) I guess we just need to know that God is in complete control and He has Jonah’s life already planned out and we need to Trust THAT Plan. As much as we know this, we still try to take back control and I think God is reminding us, HIS Plans are better.

All of Jonah’s blood work came back normal – Praise God. We got home about 2:30 a.m.  It is strange to watch Jonah know how to read his own EKG now.  They asked him last night if he thought he was going to go into the medical field and he said “no way”.  They then asked him what he was going to do and he said “Play soccer”.  This kid loves soccer about as much as he Loves Jesus! 

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My prayer is that he will be able to play soccer for many years, that God will heal his rhythm back to normal sinus rhythm, and that he will live a long life full of Joy.  Jonah has an amazing testimony and I know he will use that for God’s glory.  

As always, your continued prayers are appreciated.  Prayers for Jonah’s healing and pray for our family as some days we are just exhausted.  We appreciate each and everyone of you.  Today, we will embrace our new normal and Thank God for all the blessings he has already given our family .

GOD IS GOOD. . . ALL THE TIME!!




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A Setback to Jonah’s Journey – #PrayForJonah

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Jonah’s Journey – #PrayForJonah

Today Jonah had his first official cardiology followup app’t since his surgery. It always makes us laugh when the room is full of doctors because everyone is so intrigued by Jonah’s heart condition. If you have been following Jonah’s Journey, you know he is only the 6th person with this condition in the world. 

Dr. Suarez told Jonah today that everyone will be monitoring him closely as he will be setting the standard.  He said normally they know what to expect, but since they have little to no information on his condition, his journey and aftercare will be so important.  

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Jonah has been doing so well so we went into the app’t thinking the doctor would say he is “Perfect” and give us the instructions to him going back to soccer, etc. Unfortunately, that is not what happened. Jonah had an EKG done and the cardiologist came in and let us know that it has changed.

He is in junction rhythm, which means the upper chamber of his heart is not working. The doctor said this could be because of him just having open heart surgery but more likely than not it is because his right atrium is patched over. Part of the surgery was making all of Jonah’s blood combine, meaning both the red and blue blood now go to the left atrium and no blood enters the right atrium, because of the narrowing of the coronary sinus.  To let you know how rare Jonah’s condition is, there is not even a name for it. 

We were told that this was a possibility when he had the surgery, but because this procedure is not a standard procedure, they were not sure. The doctor ordered a 48-hour Holter monitor so they can watch his rhythm and see if maybe he goes in and out of normal rhythm with the junction rhythm. If he stays in junction rhythm, he will need a pacemaker implanted.

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This was quite a blow to me and Jamie as we truly just want Jonah to get back to normal life. I cannot say enough how much adversity he has already overcome that it would be nice to go to the doctor’s just once and them say “Everything is good.” We keep reminding ourselves that it could be worse and we need to be so thankful.  Many will say the pacemaker is an easy fix, but remember, they don’t really know if that will actually “fix it either” because of his condition being so rare.  

Of course, Jonah’s first question was “Can I still play soccer” LOL :-) He was told he can go back to full contact practice April 6th and then about two to three weeks later, can play in games as long as he is feeling up to it. He told Jonah even if he does need a pacemaker, he will still be able to play soccer, this will just be a reassurance that his heart rhythm stays normal.  

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They put the Holter Monitor on Jonah and said by Friday or next Monday, we should have the results and know what the game plan is. On the way home, Jonah said I thought my heart was “fixed”. Then he said, what do you think God’s plan is? He did not say this questioning if God had good plans for him, but wondered what I though God’s plan was for him – His testimony, etc.  Unfortunately, I had no answer for him, but I did tell him that God’s plans are ALWAYS better than ours.

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The cardiologist did tell us that this could just be a temporary response and his heart could go back into normal sinus rhythm, so I told Jonah we just need to pray and ask all of you to join us in prayer that his rhythm is fixed. We know we serve a BIG God and all things are possible with him.

 

Thanks everyone for your continued prayers, love, and support. We appreciate you all.

GOD IS GOOD. . . ALL THE TIME!!




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Jonah’s Journey – Three weeks Postop Open Heart Surgery!

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Jonah’s Journey

It is hard to believe that tomorrow will be three weeks since Jonah’s open heart surgery. Last night he went to soccer practice. He is not allowed to practice, but he wanted to be in the dome with his teammates and coach. This is what makes Jonah so happy. He has such a love for the game.

Jamie said all his teammates were so excited to see him and his coach gave him a BIG hug. They were all excited to have him back, even if it was just to watch the drills.

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He was not allowed to go back to school until today so Sunday and Monday night he had his one soccer teammate, Cole, stay with him. Cole was on springbreak and it was good company for Jonah. To be able to feel like a 13-year-old kid again without mom and dad hovering over him.

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We went to Schmucker’s for lunch and pie yesterday since we knew he would be back in school today. We had a nice time and enjoyed our lunch.

We are seeing him gain his strength and appetite back every day. It is amazing to see how he has snapped back so quickly. It truly is a miracle in my eyes.

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Jonah may be young, but he knows that God is using him to be a light to so many.  He knows he has an amazing testimony to share with so many others. A testimony of God’s faithfulness and hope.

A testimony that shows that even in the darkest and scariest of times, you can still come out on top with God on your side. It might not always look the way we want it to, but we need to know that it is part of God’s plans.

The hardest part for Jonah has been not playing soccer. He has a passion for this game like none I have ever seen. He is happiest on the pitch with his teammates. He loves everything about the game. He told us last night, he cannot wait until the first game he can play in. . . it is only 34 more days. . . Wednesday, April 19th.

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This is a day that will be full of many emotions, but mostly of God’s grace. How Jonah has overcome yet another obstacle in his life like a true warrior. He didn’t ask to be a warrior, but he fights like one, because he knows he has a BIG God.

Thank you all for your cards, prayers, well wishes, love, and support. We cannot even begin to thank you all enough.

GOD IS GOOD. . . ALL THE TIME!!




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Jonah’s Journey – Two Weeks Postop Open Heart Surgery!!

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Jonah’s Journey #PrayForJonah

This was the shirt that we got for Jonah before his surgery with his soccer number. Jonah is a strong kid that has overcome so much, and we knew that his “broken heart” wasn’t going to keep him down.

We still cannot believe it has only been two weeks since his surgery. It has been such a roller coaster and we have had a few ups and downs, but overall he is recovering well.  It has helped having others encouraging us and walking right beside us.  

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He had an echo yesterday just to make sure everything looked good. The cardiologist called us last night to let us know everything looks great. The unroofing of the coronary sinus looks AWESOME!!!

Jonah is getting stronger every day. We are starting to walk 1-2 miles a day. He is actually able to walk faster than Jamie and me at a normal pace. He never ceases to amaze us with his ability to overcome ALL odds. He told us again, that he knows God is giving him a BIG testimony to share.

I cannot thank everyone enough for all the love, support, and cards that were sent to him. I truly believe this has helped his recovery.

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Sunshine Communities Greenhouse made him this huge card. To see the smile on his face when he opened it and the love that was put into the card was so cool.

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I think we often take for granted how small acts of kindness can lift a person’s spirit. The unending LOVE Jonah has received has been instrumental in his recovery. To know you are loved and cared about so intensely means the world to people and it only takes a few minutes to let someone know you care or are thinking about them.

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Jonah will be returning to school on Wednesday the 15th with many limitations, but he is so ready. He misses all his friends from school. He has a follow-up app’t with the cardiologist on the 20th and they will determine from there when he can return to soccer. That is the hardest thing right now, he wants to be on the field with his teammates again.

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I told Jamie, I know I will be so emotional at his first soccer game because, once again, he has overcome insurmountable odds to be the Miracle GOD made him to be.  We are so thankful that Jonah is a part of the Michigan Wolves-Hawks Club.  This is a club like no other.  We have played with other clubs, but I can tell you, this club cares about it’s players, not just on the field, but off the field too.  They have all been instrumental in Jonah’s recovery from the coaches to his teammates, to all the other teams at the club – THANK YOU!!

All the while knowing he will use all of this for God’s glory :-)

GOD IS GOOD. . . ALL THE TIME!!




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Jonah’s Journey – Day #5 Postop and Home Sweet Home

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There is Jonah’s scar from his open heart surgery.  I cannot believe how clean it is.  Dr. Si is an amazing surgeon.  Thank you C.S. Mott Children’s Hospital for the amazing care Jonah received.  

I cannot believe that 5 days postop Jonah is home from the hospital. I cannot even begin to tell you how happy we all are. It has been such a roller coaster and I am sure we still have many more road bumps along the way, but one thing has remained constant, our faith in God.

During this whole journey, we have been blessed by so many of you supporting us through this dark time. It has been scary, but as Jonah said, he knows God has a story for him to tell.

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I have sat back many nights and just cried tears of joy as I have watched so many surround us. Jonah has had daily visits from his soccer coach, teammates, and parents. I think that has helped Jonah the most knowing he is so loved.

Each day they came to visit, they would encourage him to walk and they would walk right beside him.  He was never by himself.  They are not just teammates on the field, they are his teammates and friends off the field also.  

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Last night some of the boys and their parents came up. They even brought me a bag of chips (yes, I can NEVER have enough) and blizzards from the DQ for everyone. Jonah was smiling from ear to ear. Several of the boys were sitting in the bed with Jonah and it was just so precious to see how they all were there for him (and us)

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This is just a small glimpse of the visit last night. I could tell that Jonah was so full of JOY. To know that that many people care about him and even though he is still in pain, he felt “normal” again to be surrounded by so many of his friends. This is what has kept me going every day. We have shed many tears, prayed many prayers, knowing God’s timing is perfect and His plans for Jonah are better than ours. It hasn’t been easy, but we have stood on our faith. I have also been reading him the messages from so many of you and he wanted to make sure that you all know he said “Thank you”. It has truly touched his heart to know so many care and love him.

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Our daughter, Lara, arrived home from France and was able to spend some special time with Jonah.  Her boyfriend got him this autographed jersey. He was excited about the jersey, his sister coming home, and about going home.  

We got home about 2 p.m. and he has been resting comfortably. He said it just feels good to be home. We couldn’t agree more. Jamie and I would personally like to think each and everyone of you for your prayers, your love, and your support during this time. Thank you for praying us through this entire time.

He still has a long road to recovery, but he is a warrior. His first question to the doctor today was “When can I go back to soccer”. Doctor told him he can start practicing in 4-6 weeks and playing in games April 20 . He was so excited, because they have a soccer game April 21, 22, and 23. He is ready to get back out on the field!!

I told Jamie, I know I will be so emotional at his first soccer game. To know, once again, he has overcome all odds and is a Miracle and he can use all of this for God’s glory :-)




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Jonah’s Journey – Postop Day #3 and Urgent Prayers Please!!

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#PrayForJonah

The image above is perfect and says exactly how I feel about Jonah. He is such a warrior and has been since birth. He has overcome all odds already and now to have to undergo this open heart surgery and fight. He has chosen to be a warrior even after being knocked down numerous times, because if not, he is allowing adversity to defeat him. Jonah is tougher than that.  He is a person that I look up to.

He may be young, but he has more strength than most people I know. He also has more faith in God than many adults will ever have.  He is an example by the way he lives his life and by the faith he has in God.  We are proud God hand-picked us to be his parents.  

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The doctor and nurse came in today and said his chest x-ray has not really changed a whole lot. He still has fluid 0n his right lung and diminished breath sounds. They have continued the Lasix again today to see if that helps and recheck chest x-ray in the morning.  They said it can take a couple days before you see significant improvement. 

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They also told him to get up and walk some more as this would help with expanding the lungs.

They took Jonah off the heart monitor because everything was looking good, but the doctor listened today and heard what sounds like an abnormality and arrhythmia or murmur.  They are hooking him back up to the monitor to see what is going on. They are somewhat concerned, so I am asking all of you to please join us in prayer that it was nothing major.

This has been such a roller coaster and every time they tell Jonah one more setback, I see in his face disappointment, but he keeps on keeping on. He is such a warrior and knows God is in control.

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It has been such a blessing to have so many of his teammates stop up to see him. His friend, CJ, came today and went on the walk with him. Jonah walked around the unit. It is amazing to see him gain his strength every day.

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I think what has touched me the most is this may be a soccer team, but I have seen that they are Jonah’s “team” off the field too.  They are here at the hospital to cheer him on and support him as he gets out of bed and walks.  As he is struggling and in pain, they are right beside him pushing his oxygen tank and his IV pole.  Because the Michigan Wolves-Hawks Club is more than a soccer club, it is a family. When his teammates left today, Jonah said “I am so happy”. 

He also had a special visitor last night. His soccer coach came and saw him and it was so cool to see the smile on Jonah’s face. The only people Jonah has requested to see besides his siblings was coach.  We are truly blessed to be a part of the Michigan Wolves-Hawks Soccer Club, they not only make better soccer players, but they truly care about the kids. It honestly feels like one big family, one big team on and off the field, and we are so grateful that Jonah has that (and we do too). 

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Jonah gets his chest tube removed today at 1:30 and we are asking for prayers for that also.

Thanks in advance everyone for joining us on this journey and praying us through. It means more than you all can ever imagine. We love you and Jonah said he wants you all to know he said “thank you”

GOD IS GOOD. . . ALL THE TIME!!




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