February Daily Devotion ~ 2/25!!


So many times we let our “dreams” get in the way of the plans God has for our lives. I have found myself get in God’s ways so many times and have learned that if we pray for wisdom and seek God’s will for our lives, He will show us. All we have to do is be obedient. God does not call the equipped, he equips the called. Today, pray what God’s plans are for your life.


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Jonah’s Journey – Preop Day #1 PM report -#PrayForJonah


Jonah has made so much progress today. About 11 a.m. they decided to have him sit in a chair. He sat in the chair and then told us he just wanted to stand up for a minute.

I love this picture because it reminds me of our Heavenly Father’s Love for us. Jamie had his arms around him holding him up and kissed him on the forehead and said “Love you Buddy” and Jonah said “Love you too, dad”. It was truly priceless.

I think we all can relate to the love we have for our children, but when they are sick, we are reminded even more just how fragile life is.


Jonah started having some problems with his oxygen sat dropping pretty significantly and diminished breath sounds on the left side. They weaned him off his morphine as they were thinking that was putting him in to deep of a sleep and was not allowing him to take deep enough breaths. He then told us he was ready to take a walk.  He first sat on the end of the bed and is showing off his gift he received from Aunt Jen and Uncle Greggie. He loves it. He has been using the stuffed animal to push on his chest and hug when he has to cough, which is helping him significantly. Then the most exciting part, he said he wanted to go for a short walk. 

I LOVE this picture. This was his day nurse, Sarah.  She was such an angel.  The care we have received from Todd, Mike, and now Sarah has been amazing.  I cannot speak highly enough of this hospital.  God has blessed us abundantly.  

He walked out of his room and a short distance and then back to the room. When he got back to the room we were going to let him lie in his bed, but he decided he wanted to sit up again.

To make his day complete, he got a quick visit from his FAVORITE nurse practitioner, Veronica. We met her when Jonah had his third heart cath up at C. S. Mott Children’s Hospital and we all LOVE her.  

Doctor has ordered Lasix to help with the fluid around his lungs and put him on an oral narcotic. We are asking for your continued prayers for his recovery. He still has the chest tube, which is causing some pain, but overall, he is doing amazing. He is getting ready to go up to the regular floor now.  Praise God!

Thank you all for the love, support, and continued prayers. They are so appreciated. Love you all.


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Jonah’s Journey – Day 1 Postop Open Heart Surgery!


Jonah giving a thumbs up to let you all know he is doing well :-) 

Jonah finally started waking up about 10 p.m. last night and talking to us. The chest tube was causing pain, but other than that he was feeling pretty well. He started drinking a quite a bit of water, which has helped to keep his kidneys functioning.

Lara, our daughter, from France facetimed him at about 4 a.m. and he was wide awake talking to her. He is still on 1 liter of oxygen and is doing AWESOME.

He has his pain pump but has not had to use it too much.

Dr. Crowley just came in and said Jonah is doing well. He said maybe two days ahead of time and if he continues on this road, he may be able to be discharged Monday!!! PRAISE GOD from whom all blessings flow!


They are removing his arterial and central lines today and also his catheter. He is also allowed to increase his diet as tolerated. Then, he will have to walk a few times today. He is having a hard time taking deep breaths, but Dr. Crowley said that is very common after open heart surgery as the lungs collapse slightly.


Your continued prayers are appreciated while he recovers. Thank you all so much. #PrayForJonah

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February Daily Devotion ~2/24!


As humans, we want instant answers and instant gratification, but as Christians we need to learn that if God is making us wait, then there is a reason. All things need to line up perfectly to make things happen. God always answers prayers and sometimes the answer is “not now” and/or “wait”. Our job is just to trust him at all times!


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Jonah’s Journey – Open Heart Surgery #PrayForJonah



Boy has it been an emotional day for all of us. When we arrived in the preop area, Julie, the charge nurse came in to introduce herself. Her son also plays for the Michigan Wolves. She was AWESOME and that instantly put me at ease.  

Honestly, everyone we came in contact with has been amazing. All of them very kind, compassionate, and just wonderful care.

Jonah’s open heart surgery went well. They took him back at 8:30 a.m. and we were planning on it being done by 4:30 pm.  But by 12:15 the nurse practitioner informed us that Jonah’s case was done, they were just getting ready to close him up .

We were able to talk to Dr. Si about 2 p.m. He informed us all went as planned.  

We were not able to go back and see Jonah until about 3:30.  He was still very sedated, but they started to wean him off some of his meds.

There is nothing that can prepare you to see your child after a surgery like this. We shed many tears today and when they came out at 12:15 to tell us the surgery was over, Jamie and I both broke down in tears. . . tears of JOY. There is nothing better to hear than the surgery went well.

As he was coming out of the anesthesia, he still had the oxygen mask on and he opened his eyes and I said “I love you buddy” and he mouthed the words “I Love you too”. Seriously touched me so much.


Jamie and I went down for dinner and when we got back up, he just had the nasal oxygen on and boy does he look so much better.  Still many lines, but now we can see his precious face.  

The next 24-48 hours are crucial in his recovery so we continue to ask for your prayers. Please pray specifically for no bleeding and no rhythm problems.  

Dr. Suarez, our cardiologist in Toledo called tonight to check in on  Jonah.  I just cannot tell you how blessed we feel.

We are also truly touched by the 1000s and 1000s of people praying for Jonah.  Thank you all from the bottom of our hearts.  We love you all  #PrayForJonah 


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Jonah’s Journey – Update to Open Heart Surgery


Many of you are asking about how Jonah is doing.  I decided it is easiest to post in one place so each of his updates will be put here in chronological order. 

UPDATE #4 – 2 PM - Dr. Si just talked to us. They got Jonah off the vent and his BP and heart rate are normal. He has the pacing wires, but has not had to use them yet because his body seems to be adjusting. He said it would be about 30-45 minutes before we can go back and see him. #PrayForJonah

UPDATE #3 – 12:20 PM - PRAISE GOD – Surgery is done. He is in NORMAL SINUS RHYTHM, Blood pressure is fine and they are getting ready to close him up. He will have a chest tube and pacing wires, but she said it went better than they expected. Thank you Jesus!!!! It will be about 1 1/2 hours before we get to see him as they have to start weaning him off the anesthesia. #PrayForJonah

UPDATE #2 – 11 a.m. - He got completely hooked up to bypass at 10:36 a.m. and stopped his heart and now getting ready to start repairing the coronary sinus.  The nurse said everything is going as planned so far. #PrayForJonah

UPDATE #1 – 10:30 a.m. Incision was made at 9:41 a.m. and he is about 10 minutes away from being completely hooked up to the heart and lung machine. 

We left the house about 5:30 a.m. and got to the hospital. We do feel blessed by the great staff that is/will be taking care of Jonah. Jonah got taken back to the preop room and I could tell he was starting to get very anxious. After nurses, doctors, and anesthesiologists coming in, he finally asked if our pastors could come back. So thankful to Pastor Matt and Pastor Jay for being here for our family. They prayed for Jonah and then he got pretty emotional. About that time, the anesthesiologist came in to take him back to surgery. Jonah started crying very hard and asked if he could go home. It broke my heart. So emotional to see him hurting so bad.


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February Daily Devotion – 2/23


We need to learn to stay in the present moment and not worry about what might happen. God’s word says in Matthew 6:34 “Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.” One of the hardest things is learning to Trust God in all things at all times. Worry doesn’t take away tomorrow’s troubles so enjoy the adventurous journey God has put us on. Today, rejoice!!


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Thank you Leo’s Coney Island and Michigan Wolves-Hawks Soccer Club!!


Thank you Leo’s Coney Island and Michigan Wolves-Hawks Soccer Club

I am trying to put into words exactly how grateful we are, but just feel like I cannot even formulate enough to show our sincere appreciation.

As most of you know our son, Jonah, was just diagnosed with a very rare congenital heart defect. So rare, he is only the 6th case in the world.  He will be undergoing open heart surgery tomorrow at C.S. Mott Children’s Hospital in Michigan.  Last night Leo’s Coney Island with the help of Jonah’s team put on this fundraiser.  


What a HUGE turnout there was.  The owner, Bachar Ayoub, the wait staff, cooks, and Jonah’s teammates and parents were AWESOME! It was completely overwhelming to see the kindness and generosity of so many!

This whole journey has seemed to surreal to us.  To see your healthy child get diagnosed with such a rare heart condition and within less than two weeks to be told he needs open heart surgery, but God has blessed us abundantly.  To be a part of the Michigan Wolves-Hawks Soccer Club has been one of the biggest blessings to our family. 


To watch the boys bus tables and sell raffle tickets all to support Jonah – PRICELESS.  Truly we have been brought to tears so many times and at other times we just have no words.  Our emotions are just all over the place.  

The owner agreed to 15% of all sales to be donated to our family and the wait staff agreed to give up their tips to give back to support Jonah.  How amazing is that?!  They have blessed us more than they will ever know.  

Thank you to EVERYONE who has prayed for and supported our family. Thank you to Leo’s and all the servers for donating their tips. This is a business I hope many of you will support.  

Truly thank you all from the bottom of our hearts. This means more than you all will ever know. To know we are not facing this difficult time alone. Love you all ❤️❤️

. . and if you have been following our story long, you know Jamie’s way of coping with all of this is by cleaning (and he had fun last night) and mine is eating potato chips LOL :)   



If you want to follow along with Jonah’s Journey, I will be posting updates tomorrow – CLICK HERE

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